medical research Archives - Get Social Health

One of the biggest challenges in fighting a chronic or serious illness is wading through and understanding the thousands (or millions) of articles, posts, and research studies that can be found online. Medivizor has a solution for that problem by providing personalized health research curation based on a detailed questionnaire completed by a subscriber. On Get Social Health, I have a conversation with Medivizor CEO Tal Givoly about providing patients with research that is vetted for accuracy and relevancy. Catch our conversation or drop in at time stamps below.

[00:00] Introduction
00:55 Tal Givoly, CEO of Medivizor
[01:55] “Chronic web researcher”
[03:49] How does the Medivizor search work?
[05:04] How is relevancy determined?
[07:50] Needle in the wrong haystack
[08:31] Delivering any information or only currently usable information?
[09:42] Midivizor is not focused on preventive or diagnosis information
[12:55] Physician’s response to bad information from patients
[15:10] How does the physician get copies of the information
[16:30] The family physician

Tal Givoly (CEO)
Dr. Oren Fuerst (Chairman)
Prof. Steven Kaplan, MD (Chief Medical Officer)

[17:08] What is the business model for Medivizor
[20:35] Standard of care/treatment protocols
[20:35] How many patients are in Medivizor?
[21:08] Does this data reflect population health?
[23:40] Who is vetting all the information?
[24:41] Is there a community for Medivizor members?
[26:15] #PatientChat
[29:16] Why did you start Medivizor?
[32:55] How many members are caregivers vs patients?
[33:55] linking to content online.
[34:00] Where am I going to get enough content
Putting labels and roles on people
[35:25] How does social media play into Medivizor
[37:20] Is your platform in English only?
[37:55] What are your financial goals?
[38:40] How is the information provided?
40:16 Social Media Tip: Jared Johnson – Be thankful
40:56 A special Announcement! Launching the Get Social Health Academy pilot course launch!

Visit our resources page for more valuable (and free!) resources on social media and digital health.

Patients Like Me is a health data-sharing platform that is transforming the way patients manage their own conditions. Sally Okun, VP Advocacy, Policy & Patient Safety at Patients Like Me visited Get Social Health to talk about how they want to change the way industry conducts research and improve patient care. The numbers of PatientsLikeMe.com are impressive:

300,000 members
2,300+ conditions
50+ published research studies
25 million data points about disease

Numbers aside, Sally shared the Patients Like Me mission to help patients connect in a peer-to-peer network. Through their mutual sharing and support patients can also share their personal health data with researchers and pharma companies to help find health solutions and improve outcomes. Listen to the podcast or catch specific moments by following the time stamps below:

[00:00] Introduction
[00:50] Patients online
[02:15] “Dr. Google: What is “Patients Like Me?
[05:00] Getting from Patients Like Me to medical research
[05:58] Results: Epilepisy seizure metering
[06:50] How do patients share their data with their physicians?
[08:01] Are physicians using this data?
[08:50] Seeking balance of data overwhelm vs. data useability
[11:50] 320,000 patients in database, 40,000 Multiple Sclerosis patients
[13:15] Participation in pharma research
[15:58] Patient benefit for participating in Patients Like Me
[18:15] Impact of “connectedness”
[18:37] Caregivers in Patients Like Me
[21:43] Moderation by clinical specialists?
[26:50] Persona based design for PatientsLikeMe.com community
[25:32] Closed community sharing or social sharing?
[28:05] Hospital private communities compared to Patients Like Me
[30:38] What are the biggest misconceptions about online patient communities?
[33:15] HIPAA
[33:30] Is Patients Like Me growing?
[35:50] Wellness apps
[36:30] Demographics of Patients Like Me
[38:45] Patient sharing is critical
40:05 Social Media Tip: Phyllis Khare “4 Ways to increase your online reach”

Patients Like Me social sites: