Get Social Health

Telling Authentic Patient Stories

Susan Woolner of Mercy Health Hauenstein Neurosciences joins the Get Social Health podcast to talk about telling authentic patient stories. It’s not as simple as it sounds. Finding the core of the story and telling it in an empathetic way that is respectful to the patient is a primary goal for Susan. At any given time she has 6 patient stories in development from getting patient questions to working with the team of medical experts to vet out information.

One of the remarkable stories that the team at Mercy Health produced was a four-part program on DBS, Deep Brain Stimulation,  featuring patient Michael Harder. Michael was a United States veteran who served in the Middle East and was diagnosed with Parkinson’s at age 35. His patient story took over a year to produce.  With six more patient stories to share, we look forward to hearing them all. Catch our interview below or drop in at the time stamps below.

FireShot Capture - Air Force100:00 Introduction
00:39 Social Media Summit Strategic Project
01:16 How to engage experts
02:04 How to share medical expertise with lay-persons
02:50 Walt Disney
06:38 Listen to what the patients are saying or asking
06:38 Stories from patients and Physicians?
07:45 Not everyone is a good storyteller
10:07 Neurogenerative diseases are different for everyone
10:44 ow do you plan your story process
12:45 The Michael Harder Story – DBS- Deep Brain Stimulation for Parkinson’s
Michael Harder goes into surgery18:05 Surgeon narrates the process
19:08 How many stories do you have in the queue?
20:25 Where else are your stories being used?
23:00 Social media was not the primary goal
24:40 Collegial medical communities, MS, Parksinson’s, Stroke
28:00 What Do you do?
31:00 Susan’s personal Twitter case study
37:00 #ALS and observations on the #IceBucketChallenge
41:15 Social Media Tip: Dr. Bryan Vartabedian – Find a social media mentor

Susan on Twitter

Susan on LinkedIn

The Michael Harder Story: Part 1, Part 2, Part 3, Part 4

Visit our resources page for more valuable (and free!) resources on social media and digital health.

Social Media Tips from Mayo Clinic Social Media Summit

The Mayo Clinic Social Media Health Network hosted a Social Media Summit June 15-16, 2015 in Rochester, MN.

Mayo SMS 2015-400Dozens of healthcare social media marketers attended to share, learn and experience social media first hand. The event featured a keynote by Dr. Wendy Sue Swanson, aka @SeattleMamaDoc in Twitter which was live streamed by the new social platform, Periscope (@Periscopeco). During the two day event I met and spoke with a large number of the participants and corralled a few to get their social media tips to share on the podcast. Below is a list of all those who contributed to the podcast. To find out more about the Mayo Clinic Social Media Health Network visit here or read the following blog posts:

Social Media Residency and Summit are next week, Lee Aase

June Social Media Summit Reflects the Mayo Model, Lee Aase

Social Media Tips from:
Kristine Austin, Principal, KS Austin Communications
Kristy Jacobson, Public Affairs Specialist at Mayo Clinic Health System
Christina Bokusky, Communications Coordinator at Jackson In Action Community Coalition
Shelby LaCroix, Communications Specialist, Cheyenne Regional Medical Center
Caitlin Hennessay
Dr. John Wald, Medical Director for Marketing at Mayo Clinic
Quinn Nystrom Diabetes Advocate & Speaker, www.QuinnNystrom.com
Susan Woolner (@SusanWoolner)
Naomi Ogaldez, Intern at Mayo Clinic
Marie McNeill
Makala Johnson, Social Media & Content Strategy Specialist at Mayo Clinic
Paula Gill, Co-Founder CareHubs
Corey Shaffer, Co-Founder, Chief Technology Officer (CTO), CareHubs
Dr. Elizabeth Murray, Attending Physician, Pediatric Emergency Medicine, University of Rochester Medical Center
Karen Mulkey, Community Relations Officer, OU School of Community Medicine and OU Physicians
Amanda Changuris, (@AmandaChanguris)
Tony Hart, Public Affairs Associate; Social and Digital Innovation Team, Mayo Clinic
Ali Burnett
Ahmanielle Hall, Digital Marketing Specialist at Yuma Regional Medical Center

Visit our resources page for more valuable (and free!) resources on social media and digital health.

#EveryChildNeeds – AAP President takes to Twitter

When you only serve a one year term as the President of the American Academy of Pediatrics you better hit the ground running. That’s what 2015 AAP President Dr. Sandra Hassink did – with the help of her “Mission Control” team of Jamie Poslosky and Cassandra Blohowiak. Reaching out to engage with fellow pediatricians was a top priority and thus was initiated a series of Tweet Chats under the hashtag #EveryChildNeeds. Ably supported by #Tweetiatricians – Pediatricians who are active in Twitter, Dr. Hassink has led some lively Tweet Chats around topics central to promoting a healthy child. Listen to our conversation or jump in at the time stamps below.

Intro
Tweetiatrician pin 2#Tweetiatricians
Engaging with AAP members
Serving as President of AAP
What are your goals?
AAP Tweet Chats
#EveryChildNeeds
Does the hashtag live on?
Child centered conversations
August TweetChat: #Resiliancy
Tweet Chat preparation
AAPPres_everychildneeds_tweet“Mission Control”
Kids going to bed hungry
Managing the Twitter handle
Trolls
New social media platforms: Periscope and Meercat
C-Suite involvement in soacial media
AAP Training for members

Dr. Sandra Hassink

Jamie Poslosky

Summaries of chats

State of the Child

Child Nutrition

Mother’s Day Twitter Storm

Healthy Summer 

Recapturing Summer

AAP Twitter profiles

Dr. Sandra Hassink on Twitter 

American Academy of Pediatrics on Twitter 

Tweetiatrician list

#MeaslesTruth Twitter storm info

PR Daily summary

Symplur article

Blog by @Doctor_V:

Fostering End of Life Discussions

Gathering family and friends to have end of life discussions is not easy. What is a natural expectation of life does not mean we are prepared to talk or even think about how we want to end life. Defining “quality of life” is an intensely personal thing and one even our closest family members may not know. Kathy Kastner is a lay-person in the healthcare field who began blogging about the many questions surrounding dying at her website, bestendings.com. She provides resources, thoughtful blogs and curated information about EOL issues. A highly regarded speaker and though leader on EOL, Kathy has presented at Stanford MedX  and just joined a health technology company as a social media strategist and advisor on technology products for seniors. Listen to our conversation of drop in at the time stamps below.

Katahy Kastner 00:00 Introduction
00:45 Meet Kathy Kastner of BestEndings.com
01:40 How did you start talking about end of life?
03:20 Starting a blog
05:04 Terminology
08:33 Starting a conversation about death
12:44 Who should be talking about death?
21:31 Stanford MedicineX
24:24 Technologies for Aging Gracefully
24:45 Seniors and Communication Technology
27:56 Tech creators and Senior Tech Users
31:10 Healthcare Hackathon for caregivers of patients with dementia
35:15 Social Media Tip: Cynthia Manley “What’s the biggest need that can be solved by a mobile health app?”

Kathy Kastner: Blogger and Curator

Visit our resources page for more valuable (and free!) resources on social media and digital health.

Health App for Sports – Cynthia Manley

Summer football practice can be very dangerous if you’re not tracking the heat index or the chance of lightning. That’s why the marketing team at Vanderbilt University Medical Center created Smart Coach, a health app for sports coaches and trainers to keep an eye on the weather. Mobile apps are really hot (if you pardon the pun), especially in healthcare. But without a strategic plan, you could waste time, money and patient frustration in creating a health app that does not answer a specific need says podcast guest Cynthia Floyd Manley. Listen to our conversation or drop into the conversation at the time stamps below.

00:00 Introduction
00:43 Cynthia Floyd Manley
01:15 Summer Weather
02:38 Tracking Lightning
05:14 Coaches & Sports Trainers
04:50 App development team: Betsy Brandis
05:20 Defining needs for the app
07:15 Where do you get the weather information
08:35 Local or National audience?
10:45 Free vs. Fee Based
11:45 App Updates
13:00 Notifications?
13:50 Coach Smart
15:40 Baby Time Contraction Timer
18:29 Not all apps work for healthcare
20:15 Google maps location problems for hospitals
24:34 Managing stress with integrated health
27:28 “Who Moved My Cheese?” by Spencer Johnson
28:00 “Search Inside Yourself” by Chade-Meng Tan
30:00 Marketing Team at Vanderbilt University Medical Center
31:30 Website Update
35:23 Social Media Tip: Colin Hung

Mobil;e app for sports coaches

Visit our resources page for more valuable (and free!) resources on social media and digital health.

 

Facebook Tip: Promote “See First”

“You Don’t Ask – You Don’t Get”

Facebook has become one of the fastest evolving social media platforms which causes a lot of heartburn for small businesses. As a marketer and a social media professional I consume newsletters, get daily announcements, follow social media gurus and interact in Facebook daily to stay on top of the changes. I can’t keep up myself and it’s what I do. Imagine how the “Mom & Pop” retailer or the solo practice physician feels. I help both kinds of services and I’ll tell you – they’re frustrated. They are busy trying to make a living and keep up with their own industry. They don’t have time to keep up with the latest social media innovation.

“See First”

That said – Facebook recently launched a new feature that has been over-looked and could be a big help for small businesses. If they have created the kind of page that has raving fans they can use it to their advantage. As a Facebook user – the individual not the business page – you can select 30 people or Pages to “see first” in your news feed. That means we finally have the option to prioritize which 30 friends, family members or businesses whose updates we don’t want to miss. Thirty does not sound like a big number but when you think about who your “can’t miss” friends are, do you really have 30? It’s probably more like 10 or 20.

So here is the opportunity for a small business. Create an image that makes your page fans aware of this new option and request that your fans put you on the “see first” list. Will all your fans? Hardly. But it may be the ones who care the most about your business and are most likely to share your content. Therefore, it behooves you to create content that is worthy of being in someone’s “see first” list. What have you got to lose? Remember, “you don’t ask, you don’t get.”

Try it and let me know what happens.