caregiver

Healthcare Hackathon for Caregivers

April 21, 2015 Janet Kennedy Get Social Health, Podcast 0:35:25 0 Comments

Franklin D. RooseveltCaregivers of people with dementia face many challenges. To aid in problem solving for them, NCHICA, Northwest AHEC and Quintiles sponsored a healthcare hackathon on April 11-12, 2015.

00:00 Open and Introduction

        • Janet Kennedy introduction

01:35 Jennifer Anderson, NCHICA

          • 1st Event
          • Why this topic?
          • Event preparation
          • New Executive Director for NCHICA

06:40 Chris Jones, Northwest AHEC

          • How did the healthcare hackathon come to be?
          • “From Sage on the Stage to Guide on the Side”

10:26 Healther Altman, Carol Woods

          • Wearing many hats & Innovation Coach
          • Changes in the geriatric space
          • “Person First” language

14:58 Katherine Lavoie, UNC Graduate Student & Volunteer

          • How she became involved in the event
          • What are the challenges feaced by Healthcare Administrations?
          • What do you hope to gain from the weekend?

16:30 Alex Joyner, Student at Nash Community College & event finalist

          • Why did you come to this healthcare hackathon?
          • Senior’s use of technology
          • Lessons from his family

19:13 Dave Potenziani, Intrahealth

          • Health informatics
          • mHero
          • Open source tech

21:48 Tom Caurso,

          • Innovation Coach
          • Wearable tech researcher and entrepreneur
          • What do you think about the specificity of the topic?

25:07 Gail Hinte, Himformatics & Innovation Coach

          • Benefits of coaching

28:58 eHealth Transformation Challenge Winners. Team Leads Karen Appert & Soumajeet Roy

30:58 John Reites, Quintiles

          • “Co-Conspiritor”
          • Healthcare hackathon development time
          • Improvements for next time
          • Why is Quintiles involved?

34:58 Get Social Health Academy announcement

eHealth Transformation Challenge (Event website)Photo courtesy of NW AHEC

The Problem: Caregivers of those with dementia are tasked with conducing a diverse range of activities to support loved ones. They need technology tools to support them in caring for their loved ones in innovative ways.

The Challenge: To design and pitch technology-based solutions that have the potential to lighten the burden that falls on family caregivers, particularly by helping them to coordinate the demanding tasks and the complex networks of relationships involved with caring for others.

The Advantage: This inaugural NCHICA event will connect you with other innovators and industry veterans in the Triangle, NC area. Food and awards totaling $4,500 to the top designs will be provided. Tickets are just $10 for students and $90 for industry professionals. Sign-up today as space is limited

Students, clinicians, programmers, hackers, entrepreneurs, and caregiver advocates will gather and team up at Quintiles to compete in a design race to improve public health. Will you be there?

The winning team will design and pitch a viable and realistic solution to improve quality of life of caregivers of the elderly in NC.

Inspiration speakers:

Karen Appert – 20 year Caregiver and Marketing Professional

Susan Adams -Professional Gerontologist specializing in Aging in Place

Connie Bishop – Director – Compliance and Quality/Risk Management, Piedmont Health Services, Inc.

David Potenziani – Senior Informatics Adviser at IntraHealth International

Event Recap

Weekend in video for the weekend is here:

Interested in attending future events? Sign up for the Northwest AHEC mailing list

Or follow us on Northwest AHEC social channels

Lead sponsors NCHCIA, Northwest AHEC & Quintiles

Prize sponsors Booz Allen Hamilton, Himformatics, Duke MMCI program, Validic

Conf sponsors Carol Woods, RENCI, Validic

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Patients Like Me social media for healthcare

Patients Like Me: Sally Okun

March 31, 2015 Janet Kennedy Get Social Health, Podcast 00:41:06 1 Comment

Patients Like Me is a health data-sharing platform that is transforming the way patients manage their own conditions. Sally Okun, VP Advocacy, Policy & Patient Safety at Patients Like Me visited Get Social Health to talk about how they  want to change the way industry conducts research and improve patient care. The numbers of PatientsLikeMe.com are impressive:

  • 300,000 members
  • 2,300+ conditions
  • 50+ published research studies
  • 25 million data points about disease

Numbers aside, Sally shared the Patients Like Me mission to help patients connect in a peer-to-peer network. Through their mutual sharing and support patients can also share their personal health data with researchers and pharma companies to help find health solutions and improve outcomes. Listen to the podcast or catch specific moments by following the time stamps below:

00:00 Introduction
00:50 Patients online
02:15 “Dr. Google: What is “Patients Like Me?
05:00 Getting from Patients Like Me to medical research
05:58 Results: Epilepisy seizure metering
06:50 How do patients share their data with their physicians?
08:01 Are physicians using this data?
08:50 Seeking balance of data overwhelm vs. data useability
11:50 320,000 patients in database, 40,000 Multiple Sclerosis patients
13:15 Participation in pharma research
15:58 Patient benefit for participating in Patients Like Me
18:15 Impact of “connectedness”
18:37 Caregivers in Patients Like Me
21:43 Moderation by clinical specialists?
26:50 Persona based design for PatientsLikeMe.com community
25:32 Closed community sharing or social sharing?
28:05 Hospital private communities compared to Patients Like Me
30:38 What are the biggest misconceptions about online patient communities?
33:15 HIPAA
33:30 Is Patients Like Me growing?
35:50 Wellness apps
36:30 Demographics of Patients Like Me
38:45 Patient sharing is critical
40:05 Social Media Tip: Phyllis Khare “4 Ways to increase your online reach”

Patients Like Me social sites:

Blog 

Facebook

Twitter

Website

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