ePatient

Patient Community Building in Hospitals

Dan HinmonIn the “olden days” – like 10 years ago, patients had to have their own support community when dealing with illness or injury. Families and friends, if available, were their only resource  for support. As a healthy person, these caregivers couldn’t truly understand many of the issues, concerns or fears that a patient was feeling. With the advent of easily accessible digital technology and online access, resources are now available to create and support a patient community. Dan Hinmon, President of Hive Strategies specializes in helping hospitals and healthcare organizations set up their own patient communities. Dan works with CareHubs and Dan Dunlop of  Jennings Health to  aid hospitals discover their patient supports needs, set up, install and launch a private, HIPAA compliant healthcare community.

To catch the segments of our conversation, check the time stamp content below.

00:00 Introduction
01:00 Meet Dan Hinmon
01:30 HIPAA compliant healthcare community
02:00 What does a healthcare community mean?
02:42 Does “HIPAA compliance” mean the community is closed?
04:10 Always a risk in sharing
05:00 Why hospitals set up patient communities
06:10 Different kinds of patient community organizations
06:44 How are you invited into patient communities?
07:30 How is a community set up?
08:45 How to you gauge “success”?
10:15 ROI – ROE – Who funds these communities?
10:44 “Return on Community”
13:07 How does the community work once you’re a member?
14:40 Who manages the community?
17:00 Does marketing moderate the conversations?
17:50 The need for a skilled community manager
20:27 How do you manage a community that can be 24/7/365?
22:40 What are the most “engaged” health communities?
24:30 It’s a passion for Dan
25:00 The four steps to a successful online community
29:28 Time commitment needed for “Return on Community”
31:40 ePatients having a place to go.
32:20 Patient engagement is strongest in a patient community
33:10 What is the biggest misconception of Hospitals? Of patients?
34:30 What about “trolls” or difficult community members
36:40 How big does a hospital need to be to be able to support a patient community?
39:06 Social Media Tip: Susana Shephard of Mayo Clinic’s Arizona campus – How to get a video subject to relax

Visit our resources page for more valuable (and free!) resources on social media and digital health:

Dan Hinmon

Hive Strategies

CareHubs

Free webinar, Nov 12, 2014: Look Before You Leap: 5 Things You Must Know Before Launching an Online Patient Community. Register Now. If you don’t have time to listen tomorrow, sign up anyway and they’ll send you a link to watch later.

Patients Like Me

WebMd

A Challenge to Cancer… and Healthcare from Stupid Cancer

Challenges. Facing them, beating them, issuing them. Matthew Zachary of Stupid Cancer does not take life as it comes. After facing life-threatening pediatric brain cancer at age 21 in 1995, Matthew found that a lack of resources made his cancer battle hard and lonely. He beat a six-month survival prediction to continue his college career, regain the ability to play piano and committed to making the battle against cancer for teens “suck a little less.”

Matthew founded Stupid Cancer in 2007 as a non-profit organization to empower those affected by young adult cancer through innovative and award-winning programs and services. They are the nation’s largest support community for the under-served population and serve as a bullhorn for the young adult cancer movement.

Matthew ZacharyLaunching in September 2014 in a beta, Stupid Cancer has developed an app that will connect teens with other teens anonymously. To hear more about the launch of Instapeer, tun in to the episode.

Follow the conversation with the time stamp of the episode below:

00:00 Intro
00:30 Advertisement: EHR2.0 HIPAA and Security Compliance
01:25 Meet Matthew Zachary
02:18 Fard Johnmar & the ePatient
03:28 Angry patients
05:00 Teens in the healthcare system
06:38 Nothing’s connected
07:38 80% of teens with cancer are treated in a rural setting
08:16 Chemo is chemo
08:32 How can teens connect with each other
10:35 Online forums are intimidating
11:07 What would a teen use to connect with other teens
Instapeer11:30 Instapeer – Free mobile app to connect teens and young adults to each other
12:00 Build for the teen, not their dad
14:15 We “make it suck a little less”
14:45 Beta launch requirements
15:55 Matthew’s cancer journey & launch of Stupid Cancer
18:47 Closing the gap
19:35 “Nothing had changed in the survival rate for teens in 10 years and that’s not OK’
20:15 Depression and teens with cancer
22:00 Living with, through and beyond cancer
23:05 18 years cancer free – not cured
24:00 What is Stupid Cancer
25:33 We deserve to be treated age appropriately
26:20 Where does your content come from
27:55 CancerCon
29:55 How are healthcare professionals and companies dealing with digital health
30:45 Digital health startups are a colossal waste of time
31:54 The digital health world does not know it’s audience
33:00 Challenging the digital health entrepreneurial hierarchy
34:32 Social Media Success Tip from Clarissa Schlistra

Visit our resources page for more valuable (and free!) resources on social media and digital health:

StupidCancer.org

Instapeer.org

CancerCon

Health 2.0

Fard Johnmar & “ePatient 2015 – 15 Surprising Trends Changing Health Care”

Are We Paying Enough Attention to Data Security in Digital Health?

Get Social Health welcomes Digital Health Futurist Fard Johnmar as a guest blogger. We were pleased to have him as a guest on the podcast (Episode 10) and could not cover everything we wanted to discuss, particularly on the launch of his new program, Digital Health Illustrated. Congratulations to Fard and team on this new program. I know you’ll be interested in reading about it.

~ Janet Kennedy

social media for healthcareEarlier this year, health consumers, physicians, and others roundly criticized a program backed by the National Health Service to collect and centralize health data gathered by general practitioners from millions of patients across England. They were especially concerned that creating a centralized database of health records could put patients’ privacy at risk.

Are their concerns misplaced? Although data stewards take great care to secure electronic medical records, data breaches are common. In addition, we are collecting increasing amounts of sensitive health data from social media, mobile phones and now, wearable computers. Cybersecurity experts, writing in the New England Journal of Medicine and other publications warn that the health industry is woefully behind other sectors in terms of data security best practices.

In this installment of my new video blog series, Digital Health Illustrated, I focus on the dark side of the health data explosion and highlight consumers’ concerns about health data privacy and security. Click the image below to view.

Fard Johnmar is a digital health futurist and researcher focused on understanding how digital health technologies are used and perceived. He is also co-author of the global bestseller ePatient 2015: 15 Surprising Trends Changing Health Care.

Patient Recruitment – Scott Vaughan Episode 11

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Patient recruitment for clinical trials is challenging work. The advent of a fractured media market in the 1980’s and 1990’s complicated an already complicated patient recruitment process. With the arrival of multiple social media channels the choices for media buying is split even more and budgets for patient recruitment are decreasing. Clinical Trials are something that the general public does not know very much about so it was a great opportunity to get a peek inside the process from Scott Vaughan of Merge LLC.

Scott VaughanListen to the whole episode or drop in at some of the major discussion topics.

How does clinical trial recruitment work? 3:50

How do you market a study to potential  participants? 7:05

Is there a place patients can go to to identify their condition/illness?  11:00

Technology limitations in clinical trials 15:00

Pharma’s exodus from Facebook 17:30

Data privacy & HIPAA 18:30

Recommendations for healthcare not in social media 21:45

Visit our resources page for more valuable (and free!) resources on social media and digital health

Scott Vaughan on LinkedIn

Merge LLC on LinkedIn and website

Social Media Tip from April Culver of Johnston Health on LinkedIn and website

 

 

Healthcare Digital Futurist Fard Johnmar

Have you ever wanted to be a time traveler? That’s how I felt during my conversation with Fard Johnmar, healthcare digital futurist and co-author of “ePatient 2015 – 15 Surprising Trends Changing Health Care.”  Instead of looking back, Fard is looking ahead and using his unique perspective to vision how digital and social media can and is impacting healthcare. His book, co-written by Rohit Bhargava, was released in December 2013 and he has already seen some of his “predictions” come to pass sooner that he had imagined.

epatient_2015During the course of our conversation we covered a lot of ground. Here are the time stamps to help you find some of the high points (or just listen to the whole episode)!

  • Digital Health Futurist at 2:38
  • “Augmented Nutrition” at 9:20
  • Data collection & analysis at 9:50
  • “Multicultural Misalignment” at 14:10
  • Digital Peer to peer healthcare at 18:34
  • Stupid Cancer & Instapeer.org at 22:41
  • “Care Hacking” at 26:40
  • “Accelerated Trial Sourcing” at 29:00

Visit our resources page for more valuable (and free!) resources on social media and digital health

Digital Health Illustrated launch at

Susannah Fox (formerly) of PEW Internet Research at 4:34 & 19:00

Matthew Zachary of StupidCancer.org at 22:41

Google Glass at 8:05

Apple HealthKit at 8:10

ePatient 2015 – Surprising Trends Changing Health Care (Affiliate link) at 8:39

Fard Johnmar LinkedIn

Social Media Tip from Ashleigh Verdier, Digital/Social Media Strategist and Content Marketing Specialist at ABB, North America. Here a a few of Ashleigh’s recommended link shorterners: Goo.gl, Ow.ly & Bit.ly