Fard Johnmar

A Challenge to Cancer… and Healthcare from Stupid Cancer

Challenges. Facing them, beating them, issuing them. Matthew Zachary of Stupid Cancer does not take life as it comes. After facing life-threatening pediatric brain cancer at age 21 in 1995, Matthew found that a lack of resources made his cancer battle hard and lonely. He beat a six-month survival prediction to continue his college career, regain the ability to play piano and committed to making the battle against cancer for teens “suck a little less.”

Matthew founded Stupid Cancer in 2007 as a non-profit organization to empower those affected by young adult cancer through innovative and award-winning programs and services. They are the nation’s largest support community for the under-served population and serve as a bullhorn for the young adult cancer movement.

Matthew ZacharyLaunching in September 2014 in a beta, Stupid Cancer has developed an app that will connect teens with other teens anonymously. To hear more about the launch of Instapeer, tun in to the episode.

Follow the conversation with the time stamp of the episode below:

00:00 Intro
00:30 Advertisement: EHR2.0 HIPAA and Security Compliance
01:25 Meet Matthew Zachary
02:18 Fard Johnmar & the ePatient
03:28 Angry patients
05:00 Teens in the healthcare system
06:38 Nothing’s connected
07:38 80% of teens with cancer are treated in a rural setting
08:16 Chemo is chemo
08:32 How can teens connect with each other
10:35 Online forums are intimidating
11:07 What would a teen use to connect with other teens
Instapeer11:30 Instapeer – Free mobile app to connect teens and young adults to each other
12:00 Build for the teen, not their dad
14:15 We “make it suck a little less”
14:45 Beta launch requirements
15:55 Matthew’s cancer journey & launch of Stupid Cancer
18:47 Closing the gap
19:35 “Nothing had changed in the survival rate for teens in 10 years and that’s not OK’
20:15 Depression and teens with cancer
22:00 Living with, through and beyond cancer
23:05 18 years cancer free – not cured
24:00 What is Stupid Cancer
25:33 We deserve to be treated age appropriately
26:20 Where does your content come from
27:55 CancerCon
29:55 How are healthcare professionals and companies dealing with digital health
30:45 Digital health startups are a colossal waste of time
31:54 The digital health world does not know it’s audience
33:00 Challenging the digital health entrepreneurial hierarchy
34:32 Social Media Success Tip from Clarissa Schlistra

Visit our resources page for more valuable (and free!) resources on social media and digital health:

StupidCancer.org

Instapeer.org

CancerCon

Health 2.0

Fard Johnmar & “ePatient 2015 – 15 Surprising Trends Changing Health Care”

Curmudgeons and Physician Branding: Dr. Russell Faust

Dr. Russell FaustWhat do you get when you combine a tech geek and an ENT Surgeon? Believe it or not, you get a social media and online branding expert! Get Social Health spoke with Dr. Russell Faust about his life journey that brought him to being the founder of the Windriven Group, a consortium of physicians, healthcare copywriters, and marketers with a passion for optimizing the patient experience through connection in the digital world. Our conversation was far ranging, from punch-card driven computers to robotics in surgery to building an online reputation.

To follow the conversation, you can check in at the time stamps below, or catch the whole interview. Dr. Faust has some neat projects in the works, so you’ll be hearing from him again on the Get Social Health podcast.

To follow key points in our discussion, here is a time stamp of the interview:

00:42 Introduction
01:25 How did a surgeon become an online marketing expert?
03:15 Dragging healthcare kicking & screaming…
08:00 Robotic Surgery
8:50 Is social media “too light”?
10:40 How do you find time for blogging and social media?
12:50 It’s all about the content
13:00 Patients with stacks of internet resources
15:25 Recommended content sites
16:50 What type of clients does Windriven serve?
18:00 Michael Hyatt “Platform”
19:25 Independent practices have to have an online presence to compete with hospitals and big practices
20:40 “Members of the community have a choice”
21:35 PEW Research & ePatients
22:15 “You need to be found or be gone”
22:30 What’s Plan A?
23:25 Run your practice like a business
24:00 “How many of you have a brand?”
25:00 The ill-fated “Zombie Brand”
25:30 Google Search – yourself
26:35 Brand the practice or the physician?
28:17 Tangent! Hospital content mistakes
29:05 Baseball
30:10 Bedside manner & The Curmedgeon
32:20 How to use video
33:00 How to present even the curmudgeon successfully
36:55 Social Media Tip: Fard Johnmar “It’s about people”

Visit our resources page for more valuable (and free!) resources on social media and digital health

“Platform: Get Noticed in a Noisy World” by Michael Hyatt <Affiliate link>

eMedicineHealth

“Why your Brand is a ZOMBIE – and what to do about it” by Dr. Russell Faust

Zombie Doc image courtesy of yootheme icons

Fard Johnmar, President of enspektos

 

Are We Paying Enough Attention to Data Security in Digital Health?

Get Social Health welcomes Digital Health Futurist Fard Johnmar as a guest blogger. We were pleased to have him as a guest on the podcast (Episode 10) and could not cover everything we wanted to discuss, particularly on the launch of his new program, Digital Health Illustrated. Congratulations to Fard and team on this new program. I know you’ll be interested in reading about it.

~ Janet Kennedy

social media for healthcareEarlier this year, health consumers, physicians, and others roundly criticized a program backed by the National Health Service to collect and centralize health data gathered by general practitioners from millions of patients across England. They were especially concerned that creating a centralized database of health records could put patients’ privacy at risk.

Are their concerns misplaced? Although data stewards take great care to secure electronic medical records, data breaches are common. In addition, we are collecting increasing amounts of sensitive health data from social media, mobile phones and now, wearable computers. Cybersecurity experts, writing in the New England Journal of Medicine and other publications warn that the health industry is woefully behind other sectors in terms of data security best practices.

In this installment of my new video blog series, Digital Health Illustrated, I focus on the dark side of the health data explosion and highlight consumers’ concerns about health data privacy and security. Click the image below to view.

Fard Johnmar is a digital health futurist and researcher focused on understanding how digital health technologies are used and perceived. He is also co-author of the global bestseller ePatient 2015: 15 Surprising Trends Changing Health Care.

Healthcare Digital Futurist Fard Johnmar

Have you ever wanted to be a time traveler? That’s how I felt during my conversation with Fard Johnmar, healthcare digital futurist and co-author of “ePatient 2015 – 15 Surprising Trends Changing Health Care.”  Instead of looking back, Fard is looking ahead and using his unique perspective to vision how digital and social media can and is impacting healthcare. His book, co-written by Rohit Bhargava, was released in December 2013 and he has already seen some of his “predictions” come to pass sooner that he had imagined.

epatient_2015During the course of our conversation we covered a lot of ground. Here are the time stamps to help you find some of the high points (or just listen to the whole episode)!

  • Digital Health Futurist at 2:38
  • “Augmented Nutrition” at 9:20
  • Data collection & analysis at 9:50
  • “Multicultural Misalignment” at 14:10
  • Digital Peer to peer healthcare at 18:34
  • Stupid Cancer & Instapeer.org at 22:41
  • “Care Hacking” at 26:40
  • “Accelerated Trial Sourcing” at 29:00

Visit our resources page for more valuable (and free!) resources on social media and digital health

Digital Health Illustrated launch at

Susannah Fox (formerly) of PEW Internet Research at 4:34 & 19:00

Matthew Zachary of StupidCancer.org at 22:41

Google Glass at 8:05

Apple HealthKit at 8:10

ePatient 2015 – Surprising Trends Changing Health Care (Affiliate link) at 8:39

Fard Johnmar LinkedIn

Social Media Tip from Ashleigh Verdier, Digital/Social Media Strategist and Content Marketing Specialist at ABB, North America. Here a a few of Ashleigh’s recommended link shorterners: Goo.gl, Ow.ly & Bit.ly