patient experience

The Digital Medicine Society

As the host of both Get Social Health and “People Always, Patients Sometimes” (a podcast for Spencer Health Solutions), I have even more opportunity to talk with some exceptional individuals and organizations. As such I get jealous of some of the guests on the other podcasts, which seems odd because I’m doing the interviews for each. Can I be jealous of myself?

For all my Digital Health listeners, I wanted to share this interview with Jen Goldsack of the DiMe Society from the “People Always, Patients Sometimes” podcast. This podcast is a production of Spencer Health Solutions (full disclosure: my day-job!). Our podcast focuses on the innovators, thought leaders and patient influencers who are demanding change now in clinical trials

The Digital Medicine Society is a group of individuals who are committed to innovating and transforming how digital apps, medical devices, software and processes can positively impact healthcare and clinical trials. Since Jen handles all my questions so well, it didn’t make sense to repeat the same interview for Get Social Health.

Here is the interview and transcript from my interview with Jen Goldsack about the DiMe Society on the “People Always, Patients Sometimes” podcast.

The DiMe Society – Jen Goldsack

It’s time to discuss the digitalization and democratization of medicine so we invited Jennifer Goldsack to join us on the “People Always, Patients Sometimes” podcast.  Jennifer is the interim executive director of the DiMe Society, pronounced like the coin, an abbreviation of the Digital Medicine Society.  In our discussion, Jennifer spoke about the “trans-disciplinary nature of digital medicine as a field” and how, without professionals from every field at the table, the healthcare community will make mistakes and under-deliver on possible treatments for the individual.  As a nonprofit, Jennifer explained that “we do welcome all comers” at the DiMe Society – unlike other organizations, the DiMe Society charges individuals only $50 for membership, creating a low barrier of entry and ensuring accessibility to everyone.

The DiMe Society was created with the mission to facilitate interdisciplinary collaboration between professionals within the global healthcare and technology communities in their research, teaching, and promotion of best practices in medicine.  The DiMe Society believes that everyone has something to contribute to the advancement of medicine, from white-hat hackers, engineers, and clinicians to citizen scientists.  Founded earlier this year, the DiMe Society already has around 700 members from 24 countries after only 5 months of opening their doors.

To learn more about how Jennifer and the DiMe Society cultivate collaboration in the field of digital medicine, click on the link and listen to this week’s episode of People Always, Patients Sometimes, hosted by Janet Kennedy.


Challenge the Status Quo @CancerGeek

Andy DeLao is a man with an important mission, one that we should all share. Known as @CancerGeek in social media, Andy believes that you should challenge the status quo and be the change you want to see. From his day job impacting cancer center design to his new initiative, “My Ideal Patient Experience“, @CancerGeek has a commitment to understanding the patient’s experience and making it better. The global founding team of My Ideal Patient Experience includes two former Get Social Health podcast guests, Dr. Gia Sison and Marie Ennis-O’Conner.

00:00 Introduction
00:45 Meet Andy DeLao @CancerGeek
01:50 Building cancer centers
02:27 Hard to jump between country’s rules?
03:54 What was your role in building cancer centers?
06:50 Did you have to educate the architects?
07:45 Mayo Clinic and the design of patient space
09:18 Pro or Con “plush Robes”?
09:33 Worried about icing when the cake is lopsided
11:30 What’s an example of the patient improvement process?
12:50 Genesis of @CancerGeek
13:40 What is your role in social media?
15:18 “My Ideal Patient Experience”
16:15 Founding members of My Ideal Patient Experience
17:35 Global team
18:15 When can you actually have a virtual meeting?

Cancer Geek 19:12 Former Get Social Health podcast guests
Dr. Gia Sison, Marie Ennis-O’Conner
Time, Trust, Transparency & Transition
22:21 What’s the social media response?
23:45 Podcasting! @CancerGeek joins the club
24:28 Commitment to podcasting
25:20 “The Patient Scene” – Remove the curtain of OZ
26:13 Patients & Stories
27:56 What is a “Ruckus Maker”?
29:09 “It’s Your Turn” Seth Godin
29:48 You have to be part of the change
31:06 Where to find @CancerGeek
32:09 Closing
32:36 Social Media Tip: Alice Ackerman, Carilion Clinic Children’s Hospital,”Don’t be afraid of it.”
33:15 Social Media Training for Healthcare Professionals, Get Social Health Academy