Stupid Cancer

A Challenge to Cancer… and Healthcare from Stupid Cancer

Challenges. Facing them, beating them, issuing them. Matthew Zachary of Stupid Cancer does not take life as it comes. After facing life-threatening pediatric brain cancer at age 21 in 1995, Matthew found that a lack of resources made his cancer battle hard and lonely. He beat a six-month survival prediction to continue his college career, regain the ability to play piano and committed to making the battle against cancer for teens “suck a little less.”

Matthew founded Stupid Cancer in 2007 as a non-profit organization to empower those affected by young adult cancer through innovative and award-winning programs and services. They are the nation’s largest support community for the under-served population and serve as a bullhorn for the young adult cancer movement.

Matthew ZacharyLaunching in September 2014 in a beta, Stupid Cancer has developed an app that will connect teens with other teens anonymously. To hear more about the launch of Instapeer, tun in to the episode.

Follow the conversation with the time stamp of the episode below:

00:00 Intro
00:30 Advertisement: EHR2.0 HIPAA and Security Compliance
01:25 Meet Matthew Zachary
02:18 Fard Johnmar & the ePatient
03:28 Angry patients
05:00 Teens in the healthcare system
06:38 Nothing’s connected
07:38 80% of teens with cancer are treated in a rural setting
08:16 Chemo is chemo
08:32 How can teens connect with each other
10:35 Online forums are intimidating
11:07 What would a teen use to connect with other teens
Instapeer11:30 Instapeer – Free mobile app to connect teens and young adults to each other
12:00 Build for the teen, not their dad
14:15 We “make it suck a little less”
14:45 Beta launch requirements
15:55 Matthew’s cancer journey & launch of Stupid Cancer
18:47 Closing the gap
19:35 “Nothing had changed in the survival rate for teens in 10 years and that’s not OK’
20:15 Depression and teens with cancer
22:00 Living with, through and beyond cancer
23:05 18 years cancer free – not cured
24:00 What is Stupid Cancer
25:33 We deserve to be treated age appropriately
26:20 Where does your content come from
27:55 CancerCon
29:55 How are healthcare professionals and companies dealing with digital health
30:45 Digital health startups are a colossal waste of time
31:54 The digital health world does not know it’s audience
33:00 Challenging the digital health entrepreneurial hierarchy
34:32 Social Media Success Tip from Clarissa Schlistra

Visit our resources page for more valuable (and free!) resources on social media and digital health:

StupidCancer.org

Instapeer.org

CancerCon

Health 2.0

Fard Johnmar & “ePatient 2015 – 15 Surprising Trends Changing Health Care”

Healthcare Digital Futurist Fard Johnmar

Have you ever wanted to be a time traveler? That’s how I felt during my conversation with Fard Johnmar, healthcare digital futurist and co-author of “ePatient 2015 – 15 Surprising Trends Changing Health Care.”  Instead of looking back, Fard is looking ahead and using his unique perspective to vision how digital and social media can and is impacting healthcare. His book, co-written by Rohit Bhargava, was released in December 2013 and he has already seen some of his “predictions” come to pass sooner that he had imagined.

epatient_2015During the course of our conversation we covered a lot of ground. Here are the time stamps to help you find some of the high points (or just listen to the whole episode)!

  • Digital Health Futurist at 2:38
  • “Augmented Nutrition” at 9:20
  • Data collection & analysis at 9:50
  • “Multicultural Misalignment” at 14:10
  • Digital Peer to peer healthcare at 18:34
  • Stupid Cancer & Instapeer.org at 22:41
  • “Care Hacking” at 26:40
  • “Accelerated Trial Sourcing” at 29:00

Visit our resources page for more valuable (and free!) resources on social media and digital health

Digital Health Illustrated launch at

Susannah Fox (formerly) of PEW Internet Research at 4:34 & 19:00

Matthew Zachary of StupidCancer.org at 22:41

Google Glass at 8:05

Apple HealthKit at 8:10

ePatient 2015 – Surprising Trends Changing Health Care (Affiliate link) at 8:39

Fard Johnmar LinkedIn

Social Media Tip from Ashleigh Verdier, Digital/Social Media Strategist and Content Marketing Specialist at ABB, North America. Here a a few of Ashleigh’s recommended link shorterners: Goo.gl, Ow.ly & Bit.ly