The Walking Gallery

David Harlow IS @Healthblawg

David Harlow is a healthcare lawyer and well-know in healthcare social media circles with his blog and Twitter persona @healthblawg. He joined Get Social Health to talk about marketing and patient privacy, HIPAA and social media. You’ll want to listen to the whole episode but to listen to specific parts again follow the time stamp below:

social media for healthcare00:00 Introduction
00:38 Meet David Harlow
01:28 How do you commicate in 140 characters?
03:57 Healthcare Law
05:05 Our requisite disclaimer
05:26 Why is patient data private?
06:20 Privacy law and individual states
07:27 “Whatever is the most protective of a patient’s privacy, wins.”
08:50 Is anything a patient shares fair game?
10:44 The more you deindentify data, the more you lessen its value.
13:05 Violation: ER MD In Rhode Island
17:00 HIPAA and Social Media Fines
19:00 Separating political statements on a nonprofit hospital blog
20:35 Intermediate sanctions
20:44 NLRB – Employee right to complain
23:15 Obligation to train
24:25 Social media policy – Don’t assume
25:50 “Practice Preventive Law.” Audits by Office for Civil Rights
26:50 Social Media Policy ; One Size does not fit all
28:47 Do you need a social media policy if you only have a website?
30:10 Facebook, marketing lists and email targeting
34:56 Marketing was addressed specifically by the HITECH Act
37:35 The HealthBlawg
39:55 The difference between Lawyers and Physicians online
41:50 “Blog Carnivals”
45:15 Advice to get started in social media.
48:17 Social Media Tip: Sally Okun of Patients Like Me “Contribute your data”

Below are links to a number of David’s blogs, projects and social media activity:social media for healthcare

The Walking Gallery – Personalizing Patient Stories

Regina Holiday faced a medical crisis – her husband Frederick’s cancer diagnosis – and found that the patient’s experience, input or feedback had no place in the healthcare system. After the death of her husband, Regina resolved to speak out about patient advocacy the best way she knew how; with her art. She painted a mural on a gas station in Washington, D.C. illustrating her husband’s health journey titled “73 Cents” (the cost per page of obtaining your medical health records in the state of Maryland). Regina founded  a patient advocacy movement, “The Walking Gallery” for which medical providers and advocates wear “patient story” paintings on the backs of business suits. The Walking Gallery appears at medical conferences, healthcare institutions and health events to draw attention to the need for patient voices to be a part of healthcare processes and systems.

To hear more about Regina’s story listen to the podcast or drop in at the time stamps below:

The Walking Gallery00:00 Introduction
00:45 Meet Regina Holliday, patient rights advocate
01:20 Regina’s story
02:50 Can art impact healthcare reform?
03:30 Finding ePatients online
04:27 Creating a 17′ x 70′ mural
06:50 A BP Believer
07:40 “I did not fit in” The start of The Walking Gallery
09:00 Kaiser Permanente display
10:00 How long does it take to create a Jacket
13:18 Accolades and calling out healthcare
14:20 Art can start a movement
15:50 ePatient Dave, Dave deBronkart
16:29 Meaningful Use, Stage 2 – the disconnect
The Walking Gallery17:21 Open Notes – and adding to a patient’s records
20:30 Part of the solution
22:02 Giving into the lack of change
22:35 Mental locks to change
23:20 Regina Holliday – everywhere
23:44 Social Media Tip: Lisa Ramshaw: “Think big”

Visit our resources page for more valuable (and free!) resources on social media and digital health.
Regina’s Blog
Regina’s Facebook page
Regina’s Twitter profile