Month: March 2015

Patients Like Me: Sally Okun

Patients Like Me is a health data-sharing platform that is transforming the way patients manage their own conditions. Sally Okun, VP Advocacy, Policy & Patient Safety at Patients Like Me visited Get Social Health to talk about how they  want to change the way industry conducts research and improve patient care. The numbers of PatientsLikeMe.com are impressive:

  • 300,000 members
  • 2,300+ conditions
  • 50+ published research studies
  • 25 million data points about disease

Numbers aside, Sally shared the Patients Like Me mission to help patients connect in a peer-to-peer network. Through their mutual sharing and support patients can also share their personal health data with researchers and pharma companies to help find health solutions and improve outcomes. Listen to the podcast or catch specific moments by following the time stamps below:

00:00 Introduction
00:50 Patients online
02:15 “Dr. Google: What is “Patients Like Me?
05:00 Getting from Patients Like Me to medical research
05:58 Results: Epilepisy seizure metering
06:50 How do patients share their data with their physicians?
08:01 Are physicians using this data?
08:50 Seeking balance of data overwhelm vs. data useability
11:50 320,000 patients in database, 40,000 Multiple Sclerosis patients
13:15 Participation in pharma research
15:58 Patient benefit for participating in Patients Like Me
18:15 Impact of “connectedness”
18:37 Caregivers in Patients Like Me
21:43 Moderation by clinical specialists?
26:50 Persona based design for PatientsLikeMe.com community
25:32 Closed community sharing or social sharing?
28:05 Hospital private communities compared to Patients Like Me
30:38 What are the biggest misconceptions about online patient communities?
33:15 HIPAA
33:30 Is Patients Like Me growing?
35:50 Wellness apps
36:30 Demographics of Patients Like Me
38:45 Patient sharing is critical
40:05 Social Media Tip: Phyllis Khare “4 Ways to increase your online reach”

Patients Like Me social sites:

Blog 

Facebook

Twitter

Website

Nurse Friendly Andrew Lopez

One of the most active nurses in social media is @NurseFriendly aka Andrew Lopez. As Nurse Friendly he truly lives up to his Twitter handle and supports an active social media presence for himself and the nursing community. In our conversation we discuss social media, nurses on the front lines of healthcare and the many communities he supports for nurses.

Hear the details in our interview or follow the time stamps below.
Nurse Friendly Twitter
00:00 Introduction
00:45 Meet Nurse Friendly Andrew Lopez
01:45 Healthcare Tweetchats. #BCSM
03:50 Welcoming nature of Tweet chats
04:40 Andrew’s Twitter process
05:35 Healthcare Hashtag project http://www.symplur.com/
06:00 Speaking for Nurses? Speaking for self?
08:35 Employees active in social media
13:40 Social media policies
14:10 The Nurseup Facebook group
19:50 Jobs always available in nursing
23:53 Startup Weekend – Nurses as entrepreneurs
25:50 Website content
27:04 Dr. Gia Gisson #HealthXPh
35:22 Social Media Tip: Ashley Howland “Tips for live tweeting a surgery”

Andrew Lopez

The Art of Nursing conference

Work with Dr. Gia Sison, @Giasison on #MHStigma a weekly tweet chat.
Visit our resources page for more valuable (and free!) resources on social media and digital health.
Other Links:

NC Doctors Day – Thank Your Local MD

Pam Highsmith of the NC Medical Society Shares 2016 Plans for NC Doctors Day

 



NC Doctor's DayNational Doctors Day is an annual event held March 30th that celebrates local physicians. This year the North Carolina Medical Society is honoring their physicians with a new web-based program that encouraged patient participation.

To find out more, Get Social Health spoke with Pam Highsmith, Director of Development at the NCMS about their awards program, the nominees and how North Carolinians can participate by voting to honor physicians statewide.

The award had three criteria:

  • Passionate about keeping patients happy and healthy.
  • Experts in using life-changing treatments to give patients the best care.
  • And making a positive impact in the community

North Carolina Doctor’s Day Nominees (announced March 16, 2015) are:

Name Specialty City Practice Name
Edgardo Diez Physical Medicine and Rehab Asheville CarePartners Health Services
James Rene Herlong Pediatric Cardiology Charlotte Sanger Heart and Vascular Institute
Maureen Murphy Family Medicine Concord Cabarrus Family Medicine
Alan Carlson Opthalmology Durham Duke Eye Center
Ogie Asemota Pediatrics Fayetteville Calvary Pediatrics
Joseph Murad OBGYN Greenville Joseph L. Murad, MD
Gloria Graham Dermatology Morehead City Down East Medical Associates
Mark Heffington Family Medicine New Bern Merci Clinic
Ben Fischer Internal Medicine Raleigh Raleigh Medical Group
Lisa David Plastic Surgery Winston Salem Wake Forest Baptist Medical Center

To vote, please visit: North Carolina Doctor’s Day

Thank your own doctor via Twitter using the hashtag #thxdocnc

NC Doctor’s Day Sponsors

NC Doctor's DayBlue Cross and Blue Shield of North Carolina
Calvary Pediatrics
CarePartners
Durham-Orange County Medical Society
Mecklenburg County Medical Society
New Hanover-Pender County Medical Society
North Carolina Academy of Family Physicians, Inc.
North Carolina Medical Group Management Association
North Carolina Society of Gastroenterology
Pitt County Medical Society
Poyner Spruill, LLP
Raleigh Medical Group, PA
Wake Forest Baptist Medical Center
Western Carolina Medical Society 

Live Tweeting a Heart Transplant

Baylor Scott White Health in Dallas, Texas is a hospital with a strong specialty in transplant surgery. To bring attention to the need for organ donation, Digital Communications and Social Media Director Ashley Howland organized the a Twitter first; the Live tweeting of a live heart transplant. Garnering over a million social media impressions and 20,000 followers during the event was of secondary importance to the successful surgery, appreciation and  support for the donor’s family and a new surge in organ donor signups. Hear the details in our interview or follow the time stamps below.

#hearttxlive tweets00:00 Intro
00:45 Why did you live Tweet a transplant?
02:30 Need for Organ donors
02:55 Short waitlist for heart transplants
03:30 No budget
04:00 Schedules Surgery live Tweeting: Kidney Transplat & Brain Surgery
05:36 Project management a key
05:50 Were Tweets Live or scheduled?
06:50 Need for disclaimers and explanation tweets
08:50 Interviewed potential patient was in need
10:50 Transplant is the last resort
12:00 Honoring the donor
12:50 SW Transplant Alliance & Donate Life Texas
14:30 Who was in the operating room?
15:30 Media coverage
15:52 Timing of event
#hearttxlive Tweet18:38 Testing Twitter & Tweet Stats
20:35 Hashtags: #GoJane #ImADonor
21:20 Extending the reach
24:38 National coverage?
24:55 Any negative feedback?
25:45 Hearing a donor’s heart beat
28:37 Will you do it again?
29:25 Live Tweet for Education
31:32 Social Media Tip: Reed Smith “Learn a new skill”

Visit our resources page for more valuable (and free!) resources on social media and digital health.

Ashley’s Twitter Handle

Ahsley Howland on LinkedIn

Baylor Scot White Health on Twitter  and Facebook

“Scrubbing In” Blog

Video: “The First Ever Live Tweet of a Heart Transplant”

News Release 

Hashtags from the event: #HeartTXLive #GoJane #ImADonor

Digital Health Mini-MBA: Reed Smith

Reed Smith is a leader in digital marketing for healthcare having been a Hospital Association Marketing Director, a Platinum Fellow in the Mayo Clinic Social Media Health Network and on the Health committee for the SxSW festival. Through his work he realized that other healthcare marketing professionals wanted an opportunity to get an immerse experience in digital marketing to bring their skill set up to date. As a result, he founded the Social Health Institute and one of their first projects is the Digital Health Mini-MBA Certificate program. Developed in partnership with Clemson University the program launches in May 2015 and applications to attend are being accepted now.
Reed Smith, Mayo Clinics Platinum Fellow Listen in to our conversation or jump in at the time stamps below.
00:00 Introduction
00:50 Meet Reed Smith
03:55 Baylor, Smith & White Healthcare LIVE Tweet a heart transplant
06:05 #HCMKTG – Tweet chat founded by Reed Smith
07:57 Gray Digital Group
09:30 Social Health Institute founds Mini-MBA Certificate program with Clemson University
12:50 Co-Founder Bobby Rettew
14:35 Mayo Clinic lecturers Lee Aase & Dr. Ferris Timimi
17:45 Prerequisites to participate
19:18 SxSW
22:13 Startup mentality vs Healthcare entrenchment
25:50 Small/community hospitals: How do they manage social media?
28:38 How do you advise: 20,000 ft level or daily management?
31:03 Recommend Facebook ads?
33:05 How to connect with Reed Smith
35:05 Social Media Tip: Jason Papagan “Keep your social media social.”
Visit our resources page for more valuable (and free!) resources on social media and digital health.
Twitter: @ReedSmith
Reed Smith on LinkedIn