patients like me

Pharmacists and the Patient Experience

Todd Eury is the host of the Pharmacy Podcast and wants to enable conversations about pharmacists and the patient experience through his podcast and website. He is also the 4th Musketeer of the Healthcare Podcasters – a team that brings you a weekly healthcare Blab every Monday at noon EST. Todd has brought together multiple voices and conversations about the business of running a pharmacy and serving their patient communities. It was a great pleasure having him as a guest on Get Social Health and learning about his business and his exciting plans to bring even more voices to The Pharmacy Podcast. Tune in or drop in at the time stamps below:

Todd Eury is the host of the Pharmacy Podcast00:00 Introduction
00:50 Entering the pharmacy space
03:58 The launch of the podcast
05:16 Podcast numbers, Partnering with Pharmacy Times
06:49 How to name a podcast episode
08:12 Podcast Hosts
10:28 Podcast Tech
12:00 Don’t let the tech stop you from Podcasting
13:25 How often are you publishing?
14:16 Independant Pharmacies
16:55 CVS & Tobacco ban
18:29 Are Pharmacists in social media
24:57 E-Proscribing
28:53 Sally Okun and Patients Like Me
31:48 Patients and social media
35:21 How does The Pharmacy Podcast make money
36:39 Consulting – WellMed Rx
37:46 Ritesh Patel – Ogilvy CommonHealth Worldwide
39:40 Pharmacists – important point of contact
45:31 Social Media Tip: Erin Wold – Be a real Person

Co-Hosts of the Pharmacy Podcast Show — http://pharmacypodcast.com/about/ 

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Patients Like Me: Sally Okun

Patients Like Me is a health data-sharing platform that is transforming the way patients manage their own conditions. Sally Okun, VP Advocacy, Policy & Patient Safety at Patients Like Me visited Get Social Health to talk about how they  want to change the way industry conducts research and improve patient care. The numbers of PatientsLikeMe.com are impressive:

  • 300,000 members
  • 2,300+ conditions
  • 50+ published research studies
  • 25 million data points about disease

Numbers aside, Sally shared the Patients Like Me mission to help patients connect in a peer-to-peer network. Through their mutual sharing and support patients can also share their personal health data with researchers and pharma companies to help find health solutions and improve outcomes. Listen to the podcast or catch specific moments by following the time stamps below:

00:00 Introduction
00:50 Patients online
02:15 “Dr. Google: What is “Patients Like Me?
05:00 Getting from Patients Like Me to medical research
05:58 Results: Epilepisy seizure metering
06:50 How do patients share their data with their physicians?
08:01 Are physicians using this data?
08:50 Seeking balance of data overwhelm vs. data useability
11:50 320,000 patients in database, 40,000 Multiple Sclerosis patients
13:15 Participation in pharma research
15:58 Patient benefit for participating in Patients Like Me
18:15 Impact of “connectedness”
18:37 Caregivers in Patients Like Me
21:43 Moderation by clinical specialists?
26:50 Persona based design for PatientsLikeMe.com community
25:32 Closed community sharing or social sharing?
28:05 Hospital private communities compared to Patients Like Me
30:38 What are the biggest misconceptions about online patient communities?
33:15 HIPAA
33:30 Is Patients Like Me growing?
35:50 Wellness apps
36:30 Demographics of Patients Like Me
38:45 Patient sharing is critical
40:05 Social Media Tip: Phyllis Khare “4 Ways to increase your online reach”

Patients Like Me social sites:

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