Get Social Health

The Walking Gallery – Personalizing Patient Stories

Regina Holiday faced a medical crisis – her husband Frederick’s cancer diagnosis – and found that the patient’s experience, input or feedback had no place in the healthcare system. After the death of her husband, Regina resolved to speak out about patient advocacy the best way she knew how; with her art. She painted a mural on a gas station in Washington, D.C. illustrating her husband’s health journey titled “73 Cents” (the cost per page of obtaining your medical health records in the state of Maryland). Regina founded  a patient advocacy movement, “The Walking Gallery” for which medical providers and advocates wear “patient story” paintings on the backs of business suits. The Walking Gallery appears at medical conferences, healthcare institutions and health events to draw attention to the need for patient voices to be a part of healthcare processes and systems.

To hear more about Regina’s story listen to the podcast or drop in at the time stamps below:

The Walking Gallery00:00 Introduction
00:45 Meet Regina Holliday, patient rights advocate
01:20 Regina’s story
02:50 Can art impact healthcare reform?
03:30 Finding ePatients online
04:27 Creating a 17′ x 70′ mural
06:50 A BP Believer
07:40 “I did not fit in” The start of The Walking Gallery
09:00 Kaiser Permanente display
10:00 How long does it take to create a Jacket
13:18 Accolades and calling out healthcare
14:20 Art can start a movement
15:50 ePatient Dave, Dave deBronkart
16:29 Meaningful Use, Stage 2 – the disconnect
The Walking Gallery17:21 Open Notes – and adding to a patient’s records
20:30 Part of the solution
22:02 Giving into the lack of change
22:35 Mental locks to change
23:20 Regina Holliday – everywhere
23:44 Social Media Tip: Lisa Ramshaw: “Think big”

Visit our resources page for more valuable (and free!) resources on social media and digital health.
Regina’s Blog
Regina’s Facebook page
Regina’s Twitter profile

Glass half-empty? Not for MS Blogger Matt Cavallo

Get Social Health speaks with Matt Cavallo, author, speaker and chronic-illness coach who also happens to have Multiple Sclerosis. Hearing that you have been diagnosed with MS is devastating no matter who you are. But if you a 28 year old, 6’2″ former football player with a new wife and a memory of an Aunt’s passing of the same illness, it can knock you down, hard. Matt found a reason to get up and go on to become a nationally recognized MS blogger, speaker, chronic-illness coach and now, assistant soccer coach for his son’s team. Matt shares his health and life journey on the podcast. To follow the conversation listen in or drop in at the time stamps below:

Matt-Speech00:00 Introduction
00:45 #Multiple Sclerosis
01:45 Matt’s Blog
04:00 What is different now from when you were diagnosed?
05:10 Resources available?
06:45 Sharing Matt’s story
08:20 Caregiver “compassion fatigue”
08:35 Healthcare issue: “Treat the problem, not the person”
09:50 Does your message vary by professional audience?
11:20 What do you do?
13:17 Physical challenges
16:15 Glass half-full
18:47 What have you told your children?
20:45 Social sharing

24:40 “The Iceberg Disease”
25:55 Don’t trust everything you hear in Social Media

28:50 What does the non-MS person need to know?

Iceberg34:P23 Social Media Tip: Dr. Kevin Pho “Elevator Test”

Matt Cavallo’s website

Matt on Twitter

Matt on LinkedIn

“The Dog Story”

National MS Society: Resources for kids

Follow Multiple Sclerosis conversations in Twitter:



Visit our resources page for more valuable (and free!) resources on social media and digital health.



Reputation Management: Physician Friend or Foe? Dr. Kevin Pho Weighs In

Physicians know they need to be concerned about online reputation management. Getting started in social media can be a real challenge for physicians. Determining which platform to join, what to monitor, what to say or not to say. It can be very complicated. Healthcare social media pioneer Dr. Kevin Pho has plenty of advice on managing social media. He even wrote the book about it! Our conversation with Dr. Pho was wide-ranging however covering a lot of ground. Give a listen to the podcast or drop in on the conversation at the time stamps below:

Dr. Kevin Pho at Duke University Cancer Center00:00 Introduction
00:50 Content Aggregation
02:10 How do you curate 2,000 voices?
03:15 Circle of Influence: How big should it be?
04:26 Are your patients active in social media?
10:17 Minimum commitment to be in social media
12:00 Doximity
13:10 Positive aspects of social media
17:15 Claim every profile?
19:00 Balancing social media and an active practice
20:40 When are you “live” in social media?
23:25 The “next big thing” may be small
25:08 Consumer Electronics Show: Healthcare apps and wearables
26:30 Elderly and chronically ill left out of health innovation
Janet Kennedy - Kevin Pho, MD29:50 Bad review response
33:20 Don’t sue – “The Streisand Effect”
35:20 Social media tools: Hootsuite, Bufferapp, Buffer Blog
LinkedIn group

37:52 Social Media Tip: Chris Boyer “It’s a Marathon.”

Keynote speaking:
Visit our resources page for more valuable (and free!) resources on social media and digital health.

Physician Venting to Physician Collaboration: SERMO Grows Up

Social platforms, both closed and open, enable communication between patients, physicians, researchers, medical professionals, advertisers and marketers. As Community Director Christian Rubio shared with Get Social Health, sometimes all those voices can be a distraction.  SERMO, the largest physician to physician closed platform offers something that is needed, anonymity. The 300,000+ members of SERMO may choose not to identify themselves so they can speak freely to their peers. Indeed, venting was one of the primary reasons for MDs to join SERMO in the early days of the platform. While politics, both internal and external are still discussed, the larger and more critical mission of SERMO has focused on the medicine. From advice sharing to mentoring young doctors, SERMO has hit it’s stride as a vibrant, growing medical community for physicians.

Follow along our conversation as we discuss:

Meet Christian Rubio, Community Director of SERMO

Floating Doctors Panama

Floating Doctors

What is SERMO?
Verified physicians
What kinds of conversations?
Politics and Medicine
What percvent of conversation are clinical?
The Early Days – ranting
How does the platform work?
How do you search for discussions?
Health Hubs
How is content vetted

Floating Doctors

Case examples: Post-natal infection & Black Glaucoma
Marketing SERMO
Member demographics
Past – Present – Future
WorldOne acquisition
Sponsors and Advertising
Site for Nurses?
Social Media Tip: Ron Petrovich, Manager Mayo Clinic Center for Social Media – 60 Second Rule

Healthcare Social Media Tips

An end of year show calls for a “Greatest Hits” episode. Since all the Get Social Health guests were wonderful interviews, how could I pick a “best”? Therefore I decided to create a “Greatest Tips” episode and looked for some of the best social media tips from some of healthcare’s most experienced and insightful marketing and social media practitioners. Many thanks are due to my former guests for providing a social media tip after their interviews. Plus I would like to give a shout-out to all the attendees at various conferences who were patient and generous with their time when I approached with a microphone and said; “Give me a social media tip, quick!” with no time to prepare their thoughts.

I would also like to mention the conferences where I was able to collect a lot of social media tips, the Mayo Clinic Social Media Residency & Week and the Carolinas Healthcare Public Relations and Marketing winter meeting.

Below are most of the LinkedIn profiles for my “tipsters.” If I missed anyone, please let me know!

Social Media TipsLee Aase
Alice Ackerman
Dr. Betsy Bennett
Chris Boyer
Greg Chang
Katrina Doell
Nick Goodmanson
Dan Hinmon
Sarah Hudson
Jake Jacobson
Amy Jassic
Drew Keller
Stacy Kendall
Sue Klein
Kaitlynn Knopp
Tom Lee
Ahava Leibtag
Dana Lewis
Ellie Martin
AJ Montpetit
Chris Nelson
Shane Perry
Jason Pratt
Lisa Ramshaw
Josie Salzman
Dr. Mike Sevilla
Emily Solecki
Tiffany Swift
Dr. Farris Timimi
Dr. Bryan Vartabedian
Bart Verholtz

Visit our resources page for more valuable (and free!) resources on social media and digital health.

Consolidating 80 Websites: Chris Boyer

In January of 2013, Chris Boyer accepted a massive challenge; join the North Shore LIJ Health System to create a unified digital presence. The challenge? There were at least 80 websites, known and unknown, that related to the health system and affiliated entities. In our conversation, Chris and I walked through some of the challenges he and his team faced in creating a unified presence for his healthcare system.

Check the time stamp below to follow the conversation follow along the conversation.

Christening the new website

Christening the new website

00:00 Introduction
00:45 80 websites!
01:18 First Steps: January 2013
02:29 Digital presence was fragmented
02:49 Website as the hub
04:04 Branding = Logo
05:28 New website is beautiful
06:33 Web traffic
07:55 Lessons from North Shore LIJ could be applied anywhere
08:15 “Our website is not an org chart”
09:57 Who is the website for?
10:01 Gap analysis – Project Management – Content Creation
10:50 Redundant content
12:30 Rogue websites
16:45 Emergency Department wait times
18:13 11 Top Tasks that people want to accomplish on your website
20:20 Web Usability Neo Insight. Personas help from
21:27 How can you create enough content?
25:38 Word count and SEO are not the goal
27:42 SEO and targeting medical keywords
29:05 Web traffic affected?

North Shore LIJ Health System

North Shore LIJ Health System

31:42 Who is on the team
33:15 Marketing Automation
33:50 Web redesign tips
35:20 Don’t try to eat the whole elephant at one time
36:54 Social Media Tip: AJ Montpetit – Video needs good audio

Alan Cooper: The founder of Personas (Start at 11:50) YouTube Interview